tag:blogger.com,1999:blog-7017747305441637425.post577564343499802178..comments2023-10-31T08:55:40.588-07:00Comments on Day to day with Parkinson's Disease: I think I'm done.Anonymoushttp://www.blogger.com/profile/08423524246507469590noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-7017747305441637425.post-19998768432802194592012-07-23T14:56:03.104-07:002012-07-23T14:56:03.104-07:00Dear Claire,
I just discovered your blog posts tod...Dear Claire,<br />I just discovered your blog posts today after I was searching for an answer to an issue with my mother, who is battling sudden onset end stage Parkinson's now. I have only been living the "circular life" you describe since February but I so get it. I have seen most of the things you have described in some of your posts happen to my mother but in a closer span of time. She lives with me as well so I am the primary caregiver. Kudos to you for keeping it together and sharing with the rest of us. I'll go back as time permits and read more of your posts. You have a wonderful talent. Wishing you both well,take care.<br />Sincerely, <br />A kindred spirit also named Claire....Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7017747305441637425.post-29518921074208015942012-07-15T14:57:36.318-07:002012-07-15T14:57:36.318-07:00Dear Terri
I've heard from many, both here as...Dear Terri<br /><br />I've heard from many, both here as comments and elsewhere, that they wish me to continue. Please be assured that I will write again. <br /><br />As I reflect on my last post, it was written in a moment of frustration at the height of a summer that stretches endlessly before me with little chance of any change in routine, a time I associate with travel and fun in the past. I have been struggling for topics lately simply because things are so stable with Michael - thank God - and anything I can write about, I've already covered. <br /><br />Thank you for your kind words. I will post again but perhaps not for a while. Or maybe tomorrow if there's a reason to.Anonymoushttps://www.blogger.com/profile/08423524246507469590noreply@blogger.comtag:blogger.com,1999:blog-7017747305441637425.post-78883617269146817062012-07-15T13:17:01.758-07:002012-07-15T13:17:01.758-07:00Claire, I was very sad to read that you won't ...Claire, I was very sad to read that you won't be posting regularly any more. I can't tell you how important your writing has become to me over the last three years--both the beauty of the words and the ideas. Even though your life has been restricted, your words have soared around the world and have been an important part of our lives. I wish you and Michael all the best.Terri Wershlernoreply@blogger.comtag:blogger.com,1999:blog-7017747305441637425.post-50248877966843456432012-07-13T13:52:12.433-07:002012-07-13T13:52:12.433-07:00Bruce, you are a gem. I will most certainly keep e...Bruce, you are a gem. I will most certainly keep everyone posted when there is something new to report, which could be sooner rather than later, you never know. I have appreciated your faithful and positive commentary. You are one of the strong ones who inspire me.<br /><br />Love, ClaireAnonymoushttps://www.blogger.com/profile/08423524246507469590noreply@blogger.comtag:blogger.com,1999:blog-7017747305441637425.post-38110018612167327162012-07-13T05:26:40.309-07:002012-07-13T05:26:40.309-07:00Dear Bob,
Your comments made me weep. Thank you. ...Dear Bob,<br /><br />Your comments made me weep. Thank you. <br /><br />My writing will continue but is taking a different direction, thanks to the confidence I've gained through this blog-writing process. I'm dabbling in fiction..."dabbling" being the operative word since this caregiving job doesn't allow the focus needed for that craft. We'll see.<br /><br />As for this blog, I will add an occasional post as new situations arise - and they will - but I am feeling as though there has really been nothing new for quite a while and I am going more into my own brain than the external reality of the job. But Michael is very good at throwing me curve balls so there may very well be new adventures to narrate in the not-so-distant future. <br /><br />Blessings right back at you, Bob. Your story is a wonderful one to read. You are an inspiration as are all the Parkies I've met along this road. For all the people who say they could not imagine the path I am on, there are so many, like you and Michael and Bruce Potts (poet), whose journeys and stories are testimonies to the strength and resilience of the human spirit, who show true grit. I am merely one who humbly serves.<br /><br />ClaireAnonymoushttps://www.blogger.com/profile/08423524246507469590noreply@blogger.comtag:blogger.com,1999:blog-7017747305441637425.post-46171000322014161802012-07-12T20:17:09.540-07:002012-07-12T20:17:09.540-07:00Claire;
I've read your writing faithfully sin...Claire;<br /><br />I've read your writing faithfully since I first found you on the net, and will miss your well-written pieces, humor (black or otherwise) and realistic description of life as you live it. You have been an encouragement for me in both the writing (as we take a similar "day-to-day" approach) and your dedication to persevering (doing the right thing) even when it doesn't feel great. Your decision confronts my decision to proceed, notwithstanding that it has been three years as of next month. Our situations are different of course, as mine is an ever evolving/devolving game of strategy against my evasive enemy. But, if like you I no longer enjoyed the process, I would have to stop as well.<br /><br />Blessings on you. Please keep writing, not just for your sake, but for mine. My favorite line out of "Finding Nemo" is Dorie the encourager saying, "just keep swimming". So…<br /><br />BobBob Kuhnhttps://www.blogger.com/profile/04002673722921780759noreply@blogger.comtag:blogger.com,1999:blog-7017747305441637425.post-17496502867214792972012-07-11T09:14:09.993-07:002012-07-11T09:14:09.993-07:00Dearest caregiver and writer,
I guess that is it ...Dearest caregiver and writer, <br />I guess that is it maybe, caregiver first and then writer. Not matter what, you need to listen to yourself and I respect that. I also feel that the time before your birthday is bringing up layers of "stuff" ( Rudolf Steiner) and that that too shall pass. Some other writings in some other season... Now it's time to swim as much as you dare, take M. out for a drive with open windows and loud music. he will love it as well, peut-etre.You write we love you, you do not write this blog, we love you. Some things that do not change are very good, as you know. Courage mon amie.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7017747305441637425.post-75492323862868339232012-07-11T06:07:32.065-07:002012-07-11T06:07:32.065-07:00So sad. Both for you and for Michael. I selfishly ...So sad. Both for you and for Michael. I selfishly do not want you to quit blogging, hope you will find something else that interests you to write about. But I do know how much caregiving consumes your time. I feel so privileged to have found you, not only for your brilliant prose but for your friendship. Keep us posted at least on how Michael is getting along from time to time, and please, please take care of your own health! Love to you both!Bruce Pottshttps://www.blogger.com/profile/08614853902249588691noreply@blogger.com